The next community survey of SwiSCI pathway 2 has been started in the beginning of March 2017, 5 years after the first survey in 2012. About 4500 persons have receive an invitation to participate in the comprehensive survey, covering all areas of the lived experience that persons with spinal cord injury in Switzerland have.
The community survey is the first study aiming to include all persons aged 16 years or more, living with traumatic or non-traumatic SCI in Switzerland. The overall goal is to describe the SCI community in Switzerland in the long-term and to collect prevalence data on functioning and disability.
Compared to 2012, the structure of the questionnaire has been changed. Instead of three questionnaires, each participant will be requested to complete two questionnaires. These two modules are designed to ensure the longitudinal follow-up assessment of SwiSCI community survey 2012 and at the same time cover all items of the International SCI questionnaire (InSCI).