InSCI is the first global survey for persons with spinal cord injuries, initiated by Swiss Paraplegic Research and based on the SwiSCI role model.
The survey was conducted in 2017 and 2018 in 22 countries, across 6 regions of the World Health Organization. It is grounded in the International Classification of Functioning, Disability and Health (ICF), both in terms of the dimensions of the experience of SCI and in terms of the underlying conceptualization of functioning.
The overall objective of InSCI is to identify the factors that explain functioning and well-being of people living with SCI in the context of health, health-related, and other social and political systems, policies, services, and care provision. InSCI data will provide comprehensive and comparable information about the lived experience of disability.
InSCI will be operazionalized at 5-year intervals. The next international survey is planned for 2022.