SwiSCI - Cohort study
Buzzell A, Chamberlain JD, Eriks-Hoogland I, Hug K, Jordan X, Schubert M, Zwahlen M, Brinkhof MWG for the SwiSCI study group and the Swiss National Cohort: All-cause and cause-specific mortality following non-traumatic spinal cord injury: evidence from a population-based cohort study in Switzerland. Spinal Cord. Oct 7 2019.
Fekete C, Brach M, Ehrmann C, Post MWM, Stucki G: Cohort profile of the international spinal cord injury community survey implemented in 22 countries. Archives of Physical Medicine and Rehabilitation, available online 10 June 2020, https://doi.org/10.1016/j.apmr.2020.01.022
Swiss Spinal Cord Injury Cohort Study - SwiSCI - is a comprehensive cohort study for persons with spinal cord injuries (SCI) in Switzerland, funded by Swiss Paraplegic Foundation.
The core research of SwiSCI focuses on many aspects of functioning, health and quality of life of persons with SCI along the continuum of care, in the community and along their life span.
SwiSCI intends to establish a scientific basis for cost-effective and evidence-based care for people with SCI in the clinical and community setting. Furthermore the study will help to optimize procedures and planning of specialized services in Switzerland and elsewhere. SwiSCI has role model character for multi-disciplinary rehabilitation research in Switzerland.
Chamberlain JD, Gmunder HP, Hug K, Jordan X, Moser A, Schubert M, Brinkhof MWG. Differential survival after traumatic spinal cord injury: evidence from a multi-center longitudinal cohort study in Switzerland. Spinal cord. Jun 12 2018.
Chamberlain JD, Ronca E, Brinkhof MWG: Estimating the incidence of traumatic spinal cord injuries in Switzerland: Using administrative data to identify potential coverage error in a cohort study. Swiss Med Wkly. 2017;147:w14430.
Fekete C, Gurtner B, Kunz S, Gemperli A, Gmünder HP, Hund-Georgiadis M, Jordan X, Schubert M, Stoyanov J, Stucki G, for the SwiSCI Study Group: Inception cohort of the Swiss Spinal Cord Injury Cohort Study (SwiSCI): Design, participant characteristics, response rates and non-response. J Rehabil Med, 2021 Feb 11.
Prodinger B, Ballert CS, Cieza A: Setting up a cohort study of functioning: From classification to measurement, Journal of Rehabilitation Medicine 2016; 48: 131-140.
The second SwiSCI community survey was successfully conducted between March 2017 and March 2018 and recruited a substantial proportion of the spinal cord injury population in Switzerland. A Special Edition of Spinal Cordsummarizes important findings of the survey.
Hinrichs T, Prodinger B, Brinkhof MWG, Gemperli A: Subgroups in epidemiological studies on spinal cord injury: Evaluation of international recommendations in the Swiss Spinal Cord Injury Cohort Study, Journal of Rehabilitation Medicine 2016; 48: 141-148.
Brinkhof MWG, Fekete C, Chamberlain JD, Post MWM, Gemperli A: Swiss national community survey on functioning after spinal cord injury: Protocol, characteristics of participants and determinants of non-response. Journal of Rehabilitation Medicine 2016; 48: 120-130.
The SwiSCI community survey is instrumental to the establishment of an epidemiological database for SCI that provides reliable data for the comprehensive study of functioning, disability and health. The survey data contribute to the evaluation of rehabilitation or policy interventions, and build an evidence-base to inform Swiss social and health policy with regards to SCI.
The survey is repeated at five-year intervals to obtain longitudinal and up-to-date descriptions of the SCI community in Switzerland. The first survey was conducted in 2012, the second in 2017. It aims to include persons aged 16 or older, diagnosed with a traumatic or non-traumatic SCI, permanently residing in Switzerland.
Please find detailed information for each individual survey under the following links:
The inception cohort study is running since May 2013.
The study includes persons with SCI at an early stage after onset of injury. Patients are recruited at the time of admission to their first rehabilitation program in one of the collaborating rehabilitation centers (Nottwil, Basel, Sion, Balgrist). Standardized and detailed information from the acute and early rehabilitation period is collected prospectively with foci on biomedical, functional, and community outcomes.
Bickenbach J, Tennant A, Stucki G: Special Issue SwiSCI: The SwiSCI Cohort Study. Journal of Rehabilitation Medicine 2016; 48: 117-119.